Still hanging in there :D

Hi ya, yep, I'm still here and still in a flare up and still bitching and moaning about my UC and the fact that I can't get into remission. Seriously....why can't I get into remission?

I've tried everything I can think of and sometimes I think I'm on the right road only to get bumped right back to earth again. How frustrating is this disease?

So I have a stash of preds ready and by my reckoning I can start taking them again in just over a week. There's just enough then to get me back to Australia in February where I can get some more and also have a good old chat with my doctor. Nope I tried that over here with the French doctors and basically I got kicked out the door with a prescription for 5mg Pred a day when required. Get real, but I cashed in the prescription of 30 5mg tablets anyway and added it to my next stash! It buys me an extra 3 days @ 50mg per day if needed to get the blood stopped.

So what's new with me? Well I finally got to see a Naturopath and she's got me on a few new things so we'll see how they go. If anything does seem to be working for more than a few days, then I'll document it in my next blog...no point in giving false hope. I also had a bit of a scare with my 8 year old last month as he was getting heaps of stomach pains, so of course I conclude that he has what I have. To be honest I can see him as a candidate so I'm doing my best not to let him get what I have. I'm teaching him how to handle stress now...I'm teaching him how to deal with bullies and I'm really trying to teach him of how to deal with his insecurities as I really don't want him to be like me! Turns out the poor kid got hit with quite a few viruses along with getting stressed at school, but now I know what's going on in his head, I can try and help him.

Our time in France is nearly over and although a really do breath a really big high sigh of relief, I have enjoyed living here when I’ve been on the preds and symptom free, but I will be happy to go home and speak English all the time. Living in a foreign land is hard without being fluent in their language, but I have tried and can almost crack some jokes in French, though my form of humor may be different from many others :D

Doctor Issues

I'm really struggling with doctors at the moment and how they treat us. My biggest issue is that I really don't have any faith or trust in what is being prescribed. The French doctor that I'm dealing with had just given me a prescription for a maintenance drug and if I do what he says, then I'll be taking an extra 1000mg a day of the drug than what I have previously taken...that's a 50% increase in meds. Firstly I'm concerned that he didn't ask me what does level I was on now and secondly, he's not even checking me anymore. These doctors are just prescribing willy nilly. Is it any wonder people aren't getting any better and are becoming more and more dependant on drugs.

So no I'm not going to take his recommended dose. I'm going to stay on what I'm on the level I'm at now. I've got 4 more months before I can get back to Oz and get all the drugs and advise I need to get me through a further year here. Though if I can get some benefit from the rewind technique, then I might now have to bother with this French doctor anymore anyway....problem solved.

The things that scares me the most is that doctors are supposed to be smart people, but recently I'm seriously having to question their actions.

Apart from that, I'm still going well in the positive direction. I'm having a little issue with the rewind technique as I'm stuck at trying to find the 3 things that you need to think about before you get started. That's a bit of a bugger as it made me realise what a shit of a life I have been leading. I know I have good things going all around me, but it's a bit of a blow to realise where you have ended up with this UC disease...but it could be worse.........