UC check up time....all good

Now, I don't know about you guys, but I'm an absolute shocker when it comes to getting blood tests done before an appointment with the gastro....and today's appointment was no exception....

As usual I didn't remember that I needed to get bloods done until last week...then I did made the usual excuses of "I'll do it tomorrow"..."plenty of time still left" etc...well no, I didn't have plenty of time ... time ran out, so this morning before breakfast and the daily dose of meds I finally made time for our local Sullivan Nicolaides Pathology collection office.  Most of the ladies there are friendly the majority of the time ... but I have had the rare instance where you get a cranky one who won't tick the bulk bill box and your stuck with a nice little out of pocket bill.  Anyway ... today I had lovely ladies ... I recognise them ... they recognise me as the patient with some weird different tests from 'normal' people ... normal is overrated :-D

So blood tests done and off the gastros at 1pm.  I love to to see my gastro when I'm feeling fine....it means she not going to want to have a little 'lookie' anywhere.  I've been seeing her now for 5 years and we have a friendly relationship..I ask her about her trip overseas at Christmas and we swap information on our kids...nothing major...just enough to be friendly.  First up..she wants to know my blood test results ... and I have to admit I only just went, so it will be another 2 weeks before she hears anything...yep..I knew that too...but she's not worried about the results ... all's looking good ... a year clear and the intestines are holding it together still with a little help from 3x imuran & 1 salazopyrin.  My gastro still can't believe that it's the little salazopyrin that could be making the difference.  She's never had anyone that 'worked' the meds and got a good result.  As I keep telling here .... we're all different and I got lucky with my combination.

I'm in and out in 10mins...a prescription and a blood test in my pocket for next time ... she wants to see me in 3 months...so of course I push it out to 4.  Can't help myself.

So those reading this who aren't in remission ... hang in there ... 2 years ago I gave up hope and felt doomed to a life where the toilet was my safe haven ... now I'm back to being able to do what I want, when I want.

I believe things happen in life and you're supposed to learn a lesson from it ... mine is not to take life for granted as mine was taken away from me and I had no choice but to be a slave to UC ... now I try to offer assistance / help to anyone that might need it ... some people I tell my story to ... some I don't ...

I think I got dumped by the Doc

Well, this has been an interesting week. I went to see my GI on Tuesday with a little bit of trepidation as I hadn't followed his instruction...(see previous blog)..little did I know how badly he was going to take this. Now the French can be highly strung and are quite likely to through a wobbler at you over something that wouldn't really bother me, but then again we're all different and react to things differently. Anyway, basically I told him that I hadn't done as instructed with the medicines, but had in fact finished with the predisolne and wasn't going back on them at least for the next couple of months. They are evil little tablets, but unfortunately for me, they are the only thing that works to bring the flare up under control. Now that I'm finished them though, I'm told that it could be up to 6 months before my own body is creating the correct levels of cortisone.

Also of note, is that the bleeding and mucus had actually subsided. There still is a bit of mucus, but the bleeding is now minimal and hopefully will become less and less.

So what did I do to get to here....well I moved away from mesalazine and back onto Sulfsalazine(both 5-ASA). For me mesalazine wasn't working..I have no idea if it ever worked neither as I was put on sulfsalazine first, but came of it when I got headaches. Anyway, I tried mesalazine for over a year and it didn't seem to make any difference..in fact I only got worse. I also am back on the wheat grass tables, Vitamin B (for stress), daily Probiotics via yogurt and have a Paul McKenna CD to try and change my life in 7 days.

I've not been very good though with the refined sugar over the past few days...those damn Easter Eggs :D

So back to my GI...well basically I wasn't asked to make a further follow up appointment. Maybe I'm being too sensitive, but surely (and as has been the pattern for the last 9 months) he would have wanted to check up on me in a months time....oh well, not this time by the looks of it.

Maybe this should be the catalyst for me to find a new GI :D