Saturday, January 21, 2012
How much would you give for a 'normal' life?
5 years into this crappy disease, I often wonder what it would be like to be 'normal' like everyone else again. But what is normal anyway and is it all really only a facade? People put on such false faces all the time and why, just to look better in front of other people or pretend they have more than they really have. What a lot of wasted effort. UC unfortunately teaches us all about humility. I don't even know how many little 'accidents' I have had in the last few years, but each time it happens in public I deal with it and clean myself up and deal with the pity others show for me. How humiliating but with it comes inner strength.
So maybe I'm richer for my own type of 'normal' life but no, I wouldn't wish it anyone else.
Tuesday, January 17, 2012
Update on life :D
As I sit here typing I have the unfortunate pleasure of listening to Duff-Duff music from a teenagers party next door on a working week night close to 11pm !! My brain is saying "Shut the F@$! Up your little shits as I need to be up at 6am, but my heart says let them have fun...they are young..their parents (one an ex MP) are away and it's summer holiday time here....come 1am though my head will be telling me to just call the police the get them to be quiet if it's still going!!
Oh good god..we've now switch to Dexy's Midnight Runners and "Come on Eileen"..well at least the DUFF DUFF has gone.
I had my GI appointment yesterday and still no mention of the dreaded Colonoscopy procedure...so I'm sorry...but I'm not asking for that procedure ... she'll have to tell me it's time! 'Chicken' - I know, 'Get it over and done with' - I know, 'See how everything is hanging in there' - it hasn't been! It's angry and inflamed.
I did however tell the GI the facts as things stand right now and we're making a few med changes just to see what happens over the next 5 weeks. I can still work though and I'm getting through the days without too many 'OMG...run!'
Life isn't that bad really....it could be worse I could be a spotty teenager going through all that hormonal stuff again!
Happy New Year to all that read it.
........ and just in case your the same age as me and have had the memories of your teenage years brought back by the thoughts of Dexy...here's the link to the tune :D - Dexy's Midnight Runner - Come on Eileen
but here are links to some of my favourite songs from the 1980's and the good old days :D
Visage - Fade to Grey
Icehouse - Hey Little Girl
Ultravox - Vienna
The Human League - Don't You Want Me - I grew a rat's tail because of them too!!!! :D
The Boomtown Rats - I Don't Like Mondays
there's plenty more...but you go find your own :D .... ah...the 80's ....when boys wore makeup and had perms and nobody thought that was strange .... I loved the 80's!!!
Oh good god..we've now switch to Dexy's Midnight Runners and "Come on Eileen"..well at least the DUFF DUFF has gone.
I had my GI appointment yesterday and still no mention of the dreaded Colonoscopy procedure...so I'm sorry...but I'm not asking for that procedure ... she'll have to tell me it's time! 'Chicken' - I know, 'Get it over and done with' - I know, 'See how everything is hanging in there' - it hasn't been! It's angry and inflamed.
I did however tell the GI the facts as things stand right now and we're making a few med changes just to see what happens over the next 5 weeks. I can still work though and I'm getting through the days without too many 'OMG...run!'
Life isn't that bad really....it could be worse I could be a spotty teenager going through all that hormonal stuff again!
Happy New Year to all that read it.
........ and just in case your the same age as me and have had the memories of your teenage years brought back by the thoughts of Dexy...here's the link to the tune :D - Dexy's Midnight Runner - Come on Eileen
but here are links to some of my favourite songs from the 1980's and the good old days :D
Visage - Fade to Grey
Icehouse - Hey Little Girl
Ultravox - Vienna
The Human League - Don't You Want Me - I grew a rat's tail because of them too!!!! :D
The Boomtown Rats - I Don't Like Mondays
there's plenty more...but you go find your own :D .... ah...the 80's ....when boys wore makeup and had perms and nobody thought that was strange .... I loved the 80's!!!
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