Wednesday, March 30, 2011

OMG!!! hair loss

So this is something that I have just may remember form previous posts that way back on Sept 09 when I went for my first French haircut, that she basically cut my hair a lot shorter than I'm used to an since then I have been trying to grow my hair back to the longer length it was. For the past 18 months though my hair has been really dry and I put that down to the climate here. Because of that I got it regularly trimmed and keep it in a short bob up until December 2010 when I decided it was time to grown it longer again in readiness for going home where it often in a ponytail due to the heat and humidity in summer.

Well, imagine my surprise a few weeks ago when I tried to put it into a ponytail and finally realised that I have probably lost over 1/3 of my hair. I always had loads of the stuff, to the point were I used to ask the hairdresser to thin it out. I have no idea exactly when this started happening and have only just come across an article last night which seems to suggest predisolne is the cause. Didn't know of that little side effect!!

I restarted Pred again last December, but that also coincided with a trip to the hairdressers that wrecked a heap of hair due to over processing, so I didn't make the connection with predisolne until now. It's been over 3 months and the hair I had expected to grow back hasn't.

So a little research last night lead me to discover this...some people lost about 1/3 of their hair over the course of 6 weeks while tapering down on pred. When their hair grew back, it grew back curly instead of straight and the texture was different.


Well, I'm tapering down...although I severely doubt I'll get off Pred as I'm bleeding already at 30mg and have been since I tried to drop to 40mg. Once I get back to Australia I have an appointment with my GI, but that isn't until 10th May. A long wait time. Oh well, what can you do?

Another thing I've read is that in general medicines can affect hair loss. Maybe it is Pred, maybe it's not, but I'm missing a heap of hair!!! .... hopefully it will grow back soon...we're leaving here on Friday, so hopefully by 7.30pm on Saturday night, I'll be about to arrive back on home soil :D ....maybe I'll even get back into remission after 2 years of hell...well a girl can dream :D

Friday, March 18, 2011

Ever started an e-mail with "Bullshit"?

Ever started an e-mail with "Bullshit"? ... well I hadn't until the other day:D

So here's what happened.... I put an onine order in for 5 magnet fridge magnets...just 12cm x 4cm..plastic..not get the gist? They came to a total of $34.75 (USA dollars) and along with that I paid an additional $12 (USA dollars) for postage to France. That's a fair enough postal cost I reckon. I paid for this on a debit card and only put enough money onto the account to cover costs. I do payments this way when I haven't done business before with overseas companies I'm ordering from. Previously I've had to cancel credit cards as funds have been deducted without my approval and for me this is the easiest way to handle it now.

So here's the e-mail I got 2 weeks after I put in my order...

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Dear Paula,
Thank you for your order. It is ready to ship, but because of the size and weight, the cost to ship your order is $40.00 through Fed Ex or $35.54 through USPS. You have paid $12.00. Please let me know how you would like us to ship your order and if the additional amount is okay to add to your credit card.

Sommer Brant
Customer Service

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HHMMMMMM...well that wasn't the actual words I thought ....and here's my reply

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To: Sales
Subject: RE: New Order # 5200002165

No I am not willing to pay extra when you advertise that for my cost of order the shipping cost is $12.00. Please explain how you think you have the right to charge me more! I have a copy of your website shipping costs advertising the price. Refund my money immediately as this is false advertising before I take further action!!


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In the mean time, I'd contacted my debit card company and asked them what I could do in situations like this and if there was any way of getting my money back, to which they replied yes and started the process for me. I did however get a reply back from the company, with an apology, but realistically, the damage was done.

As you can see from the e-mail below, they were able to reduce the size of the packaging. But the point is why couldn't they have done that in the beginning and saved all this hassle. Why would I pay more for postage than the actual cost of the contents?

I cancelled the order and got all my money back, including all bank charges.

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From: Dawn
Subject: New Order # 5200002165

I apologize that you were contacted about paying more money for shipping. You are correct, our website does not say anything about charging more money for shipping. All shipping costs are based on the size and weight of the box. I took your package back to our shipping department and asked them to re-package it in a smaller box so it would be less expensive to ship. We were able to reduce it to about half the size of the original box. If you’d like to continue with your order at no additional shipping charge please let me know and we will ship it today via USPS otherwise we will cancel and refund your order.

Warm Regards,

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Oh well, all's well that ends well and the debit card is the way to go.

What a month

Nearly time to go home :D - I'm so excited :D - 1 car and 1 house gone, just one more car to go next week. In less than 15 days I'll be back home in my own house in my own little suburb and life might get back to "normal" again. Well, as "normal" is to me :D

Like I said before (many, many times) in France has had a few downs, but there has been ups along the way. If only I hadn't have had UC to deal with...but might have been a bit boring then and I might never have gotten to appreciate certain things in life.

Do you ever wonder why were were given this crappy disease to cope with? Sometimes I reckon it's to make me a better person, but bloody hell, was I really that bad a person to begin with? Jez, I'd never want to inflict this disease on anyone, no matter how much I hated them! Hate isn't probably the right term...but you know what I mean!

But, without the UC, I would never have agreed to come to France ... without the UC, I would never have met some of the lovely people that I had ... without the UC, I would never have gotten to learn to drive like this mental French people in Provence, without the UC, I would never have learn't to curse in another language and without the UC, I would never have had such much fun there in the 'good' months. So yeah, I have a lot to be grateful to UC for. I still want rid of this damn disease though!! Can someone please "beam me down" a cure please!!

Wednesday, March 16, 2011

Spare a thought for someone else

I've been thinking all this week about all those poor people in Japan. My life is absolute bliss compared to the hell some of those people are going through right now.

The sad thing is that they have years of this ahead of them to deal those. All those villages along the coasts just wiped out and thousands of people died. How do the ones left recover from this?

So spare a thought for everyone worse off than you...because even with our crappy disease...we're a hell of a lot better off.

Thursday, March 3, 2011

How do you know when it's time

How do you know when it's time to go get the op?

So I asked my neighbour this question last month and the answer was, "You just know". Well, I don't know.

How much pain do I need to be in? Should I wait until the doctor tells me its time? Should I wait for the first signs of cancer?

I'm hoping that I never have to have this operation, but reality is that I will at some stage. I want the miracle!! I don't want the op.

I was reading a story the other day about Freddie Mercury and it stated that is only Freddie could have survived another year, the advances in medicine and especially in the treatment of HIV and AIDS could have saved him.

I know UC is not on the same level as Aids, but I keep hoping that if I can survive with colon intact for a bit longer, then the medical world might actually have the break through that we need.