So this is going to be a bit of a whingy blog as I am constantly battling my issues over the so called specialists' knowledge.
So basically I find myself now with very low cortisone levels...not good for someone trying to get off the steroids.
Back in November I should have seen the warning signs, but I'm not a doctor so I didn't think that much about not getting the full on 'rush' and 'euphoria' when I commenced taking prednisolone at 50mgs. At the time I did think it was strange as my previous experience on prednisolone had seen the euphoria as well as the mood swings or irritability. Also it seemed to take a lot longer to get the UC under control this time...it was 4 weeks of 50mgs before the blood cleared up, although my stools returned to normal quite quickly, i.e. less than 2 days.
So in future and at the onset of bleeding but before I get told to get back on prednisolone I'm going to ask for a blood test which will include my cortisone levels, just so I know where I'm starting from. I feel that the specialist should have done more blood work, but as this is quite new to me still, I'm on this huge learning curve about what I should and shouldn't be doing and when. Also they are supposed to know about this stuff, but sometimes I feel like a guinea pig and they are practising their theories on me...but at what cost?
In fact, I don't want to go back on prednisolone once I finally get off this round, but to do that I have to get my UC under control and stop stressing out about every little thing in life.
I'm going to go back to Guy's book and read it again and see if I can do more with his 'rewind' technique as I really couldn't get a handle on that last time....